Category Archives: Feelings

Feeling Guilty

All cancer survivors! Walking together, surviving together!
All cancer survivors! Walking together, surviving together!

Have you ever felt guilty about something? Maybe you stepped on a bug on the sidewalk? Elbowed your kid in the head by mistake? Ran over a squirrel in your car? I think we have all done these things, felt guilty about it for a moment and moved on. I once was shopping in Zellars (The Canadian version of Kmart) with my Mom, and I was young enough not to be able to see over the counter, so I was five maybe? I was REALLY excited over this new Barbie my Mum let me pick out. I clutched her in my arms throughout the entire store, I looked into her eyes and day dreamed of the dressing changes we would be doing and plastic car rides we would be going on. My Mum bustled me along, as she grabbed her bags to leave. Out in the parking lot she realized I was still clutching the dang Barbie and had not paid for it. I remember her DRAGGING me back into the store like some common criminal. I was embarrassed, but more than anything, I felt GUILTY. Like a deep ache of guilt, like would be Mum ever forgive me? Could I ever forgive myself? Will I still get into College?

Fast forward 20 years and here I sit, snuggling with my beautiful healthy five year old boy that happens to be a cancer survivor. Yes, we have a few side effects and setbacks due to Cancer, but in the grand scheme of things, we had a very lucky journey. As I sit here, running my hands through his hair that grew back a much darker colour, I cannot help but to think of the friends of ours that are still battling the disease. Why is my child ok but theirs has relapsed? Why did they go through 12 ports and ours was perfectly fine? Why is my child alive while theirs is dead? The guilt swallows me up some days. Do I deserve to have a healthy child when some great Mums out there are missing theirs? I can’t wrap my head around it. Logically, I know it’s silly, I should be shouting from the roof tops and dancing a jig at our luck. But how can I be celebrating when other kids are dying? When other kids are still fighting? Apparently it’s called Survivors guilt which is a part of my PTSD. That’s great that there is a nice little name for it…but how do I fix it?

The long and the short of it? I DID make it in to college, LOL the Barbie trauma is long behind me. But the Survivors Guilt? I find myself inserting myself into my Cancer Community, doing things like running a Parent’s Support group, organizing a Super Hero sewing bee so every sick kid gets a Courage Cape and lots of fundraising events through the year. Events like Relay for Life is a great day where Cancer Families and their supporters plus great members of the community get together to walk together and raise money. Its a way of connecting. Look up your local Cancer Society or Ronald McDonald House as they always never volunteers I feel like instead of filling my heart with guilt and dread, I actively fill my heart with love from these other Cancer families. Yes, by putting myself out there, I could get hurt again as our friends may relapse but the love far outweighs any of the bad.

The guilt? I will never be able to fix it but I CAN put it in a figurative little box, with a pretty little bow. I know it’s always there, tugging at my heartstrings but I don’t have to open it all the time. I keep it close to my heart, I think about those kids all the time but I’ve learned that it doesn’t have to take over my whole day, I don’t let the guilt consume me anymore. I’m allowed to laugh and enjoy my cancer-free child. We all know life is just too precious and too short to be worried about something I cannot change.

Hug your babies tight tonight…and remember, you are not alone.

 

A Different Kind of Loss

We have talked about losing your child, we have discussed the loss of friendships, now lets talk about a different type of loss…your innocence. I know this might sound odd at first. But I find myself grieving my loss of innocence and now I’m intimately surrounded with Cancer, and hospitals and everything that goes with it. I didn’t go into a medical field on purpose. I don’t want to see the ugly realities of cancer and sick babies. I hate that Cancer has FORCED me to be an expert in the field of Momcology. I don’t like that I can change a feed tube, de-access a port, or give a shot in the leg like a pro. I want to be a Mum. I want to raise my child without the constant worry of illness. I feel that I can’t let him go like I should. I’m a hovering helicopter Mum, making sure he doesn’t hurt himself, or hang out with the kid with the runny nose or lick the swing. Yes, Griffin is Cancer free now, but I don’t feel like I’M cancer free. I wonder if I ever will be? I’ve seen the dark side of life. I’ve danced with the idea of losing my child. I’ve seen how fragile life can be, can I ever go back to the carefree days? I don’t think so. Once you have opened that door, the fear and anxiety creep in.  I’ve watched as they radiated my son while I hid behind lead, I know what its like to watch your child get sick in your arms and to be helpless to help them. I’ve watched other Mums grieve their babies while I hug mine tight. Its a reality that haunts me to this day. Am I crippled by it? No, but some days it still hurts. A lot. Its not something that I think about everyday or anything, but every now and then it keeps me up at night. I hate that my head is no longer mine…

 

Hug your babies tight tonight. XOX